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Click here for our latest Newsletter:  NL Winter 17

You can find an archive of Newsletters at the bottom of this page

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A selection of what’s been happening . .

12 to 14 May 2017

Mary Hainline once again opened her garden and house for her Art Sale, and invited us along to wave the MND flag. With commission from sales, the raffle and refreshments, the Branch finally ended the weekend better off by a magnificent £1820! Our thanks are due to Mary and Doug, all those who helped out, and all those who donated in whichever way.

 

22 December 2016

Eamonn Cann is one of ‘our’ people living with MND, but he is determined not to let that stop him singing! He’s a great Sinatra fan, and treated the customers at The Greyfriar pub in Chawton (near Alton) to a special performance of swing numbers from Sinatra and others just before Christmas . . and he kindly donated the proceeds of the evening to this branch. What with the raffle and auction, we are £664.00 better off!

Huge thanks to Eamonn for a great evening, and for helping us in this way.

In the pictures below: Eamonn in full swing, and with Trevor Jones, mine host at The Greyfriar.

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December 2016:

Judith Shrubb, wife of our friend and branch member Paul, who is living with MND was awarded    ‘Carer of the Year’ by BBC Radio Surrey!! A fantastic achievement, and so well deserved. The award was presented by the Chief Constable of Sussex.

She was interviewed after the presentation, and you can hear it here: http://www.bbc.co.uk/programmes/p04jc43k


Paul is incredibly proud of you Judith, and so are all of us. Well done!

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12 September 2016

Today the MND Charter was adopted by Surrey C.C.!


Pictured outside County Hall beforehand are: (L to R) Bob of W. Surrey Branch, Dave Setters of E. Surrey, who’s worked hard to get this done, Joanne Shaw, and Helen Setters. Picture taken by Rae Martin-Smith, the MND Assoc’s fantastic Campaigns Manager for the South. Many thanks to all of them, and to Mrs Helyn Clack, S.C.C. Cabinet Member for Wellbeing and Health.

To top it off, Joanne agreed to become Campaigns Contact for W. Surrey Branch, so a good day all round!

Helyn Clack signing the Charter for Surrey County Council

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September 2016:

Our first member living with MND has had a trial flight courtesy of ‘Aerobility’ at Blackbushe Airport. Aerobility is a charity dedicated in facilitating flying for people with all sorts of medical problems. In some cases, they may be able to continue with a formal course culminating in a Private Pilot’s Licence.

Paul Shrubb became Biggles for the day and thoroughly enjoyed his flight. Judith rode shotgun to keep him in order!

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On Saturday 19th March 2016, we were represented at the Waverley Singers’ performance of Bach’s St John Passion in Aldershot, and benefitted from the retiring collection.

WS Concert

We gave a short presentation about MND and the work of the Association, the last part of which was a reading by Rosalyn Landor of  MND Trustee Mark Stone’s piece about the impact of MND on him.

Rosalyn Landor reading ‘MND and Me’ by Mark Stone

Mark had read this on Radio 2 in October last year, and the BBC broadcast the programme again on Mark’s death in early February. The audience at the concert were greatly touched by the reading, and asked if we could make it available.

Here it is:

‘MND and me’

by Mark Stone

‘Up and down, up and down

I will lead them up and down

I am feared in field and town

Goblin, lead them up and down’

(Midsummer Night’s Dream, Act III, Scene ii   –  William Shakespeare)

As Puck to the lovers in Midsummer Night’s Dream (Shakespeare’s ‘MND’?), Motor Neurone Disease has proved a rollercoaster ride for this mere mortal.

It has changed everything; not ‘nearly everything’, but literally everything. Good, bad, or indifferent – whatever else, everything has changed.

It has brought out the best in people – and the worst in people, including, of course, me. But everything has been transformed, whether subtly, or dramatically, by the experience of gradually losing facility – and knowing that there’s nothing you can do about it.

Well, you can, of course –  mentally, psychologically, spiritually. But physically, the die has been cast and you are on a journey that you cannot alter.

The process is subtle, gradual, inexorable:

snip, you can’t keep up with your family in the street;

snip, you can’t control your foot against the rip at the beach;

snip, you can’t drive;

snip, you can’t do the stairs without using the banisters;

snip, you’re no longer safe in the shower;

snip, you need crutches outside;

snip, you can no longer visit your parents’ house;

snip, you can’t get to your kids’ rooms;

snip, you’re breathless every time you walk;

snip, you need a wheelchair;

snip, you can’t get into a normal car;

snip, you can’t get into your own house;

snip . . . snip . . . snip . . .

Time – and people – are the most precious things of all.

Time wasted is impossibly cruel, an abomination, an unspeakable injustice.

Time spent well, especially when shared – massacring madrigals with friends, Bach & Bruckner at the Proms, dappled sunlight on old church walls – is the greatest gift of all.

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 The Ice Bucket Challenge

. .  in the summer of 2014 was an amazing event which raised lots of money and awareness. Here are just a couple of our ‘Ice Bucket Challengers’!


‘Camberley News’ article about Mark & Cheryl Samson


imageSW Surrey Branch were sad to hear of the death on the 29th May of Roy Redford. Having started long-distance running at the age of 60, he ran 52 Marathons in all, including the events in London, New York and Berlin. Many of these were to raise funds for our branch of the MND Association, and over the years, the funds raised were more than £50000. His achievements were recognised by his being selected as a sitter for a portrait by artist Patrick Joyce, who is living with MND. The branch was represented at Roy’s funeral, and we offered his family our condolences and appreciation for all his efforts for the MND cause.


Newsletter Archive

NL Autumn 17

NL Summer 17

NL Spring 17

NL Winter 16

NL Autumn 16

NL Summer 16

NL Spring 16

N L Winter 15

NL Autumn15

NL Jul 15

NL Feb-March 15

NL Jan 15

NL Nov 14

NL Oct 14

NL Sept 14

NL Jul 14

NL Jun14

NL May 14 NL May 14 addendum